ABOUT LILY

Lily loves spending time with her family and friends in the beautiful mountains of Colorado, at the family cottages on Lake Michigan, in the rainforest of Costa Rica and playing on the water at Shelter Island.

Lily is active… being so is part of the CF wellness protocol. She spends most of her time outdoors engaged in various sports & activities. Exercise is extremely important for lung health.

Lily skis, rides horses, plays lacrosse & field hockey, waterskis, surfs & rides roller coasters at Michigan Adventure. Does riding roller coasters count as exercise? Probably not. However, screaming at the top of ones’ lungs definitely gets the tiny airway sacs of the bronchioles fully engaged.

Singing has a similar effect on the lungs…. movement.  Vibrations create muscle, from muscle comes strength. And with strength comes the ability to work through some of the glitches that come with the CF disease.

As a family, we have taken several trips to the verdant land and sandy shores of Costa Rica. Being in a natural saline-infused environment, playing in the ocean and howling at the monkeys is restorative. It’s a lot of fun as well.

Shelter Island is our destination for a few weeks each summer. This twelve square mile island is nestled between the North and South Forks of Long Island. It is surrounded by Shelter Island Sound, Gardiner’s & Peconic Bay, which provides plenty of salty volume for Lily’s water activities.

Breathing in the salty mist from the ocean has been proven to restore balance to the lungs. It acts as a natural lubricant, allowing the lining of the lungs, bronchus and bronchioles to stay moist. The result? …the ability to take deep, healthy, full breaths. Therefore, we try to get Lily to a beach a few times each year.

Many of the beautiful photos of Lily that you see throughout the website were taken by Michele Cardamone Photography. Michele photographed Lily to help raise awareness of CF.

Michele also wrote a wonderful article about Lily which she shares with her clients.